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A free webinar, hosted by PMLive and Atlantis Healthcare, addressed the adherence issues faced by patients with rare diseases – and what the wider healthcare community can do to address them.
Living with any chronic health condition can be demanding, but rare diseases bring a unique set of challenges for patients. These can range from diagnosis difficulties to limited information and support, a lack of knowledge – even within medical services – and social stigma. Such challenges negatively impact patients and carers, preventing the best possible health outcomes from being achieved.
This webinar brought together a health psychology specialist and a patient research expert to discuss how a ‘belief-based’ support approach, combined with the latest thinking in health technology, could be the answer to meeting the needs of patients with rare diseases.
The webinar also investigated how a long-term strategy that accommodates the changing support needs of individual patients from childhood to adulthood can be delivered at a global level – while still resonating at an individual level for patients.
To view the Rare Diseases webcast please follow this link.